For a rare genetic disease, Cystic Fibrosis can certainly hit home. Since I started posting CF events on my social media pages, I've been overwhelmed by the stories about how CF impacts your own life.
As I've been sharing stories of Washington D.C. families fighting for a cure for CF, I've been looking for a way to connect back to my hometown crowd too. To have Nicole be willing to share her story with you all means a lot.
Last week, she sent me a message to give you a small insight into her family's day-to-day life.
At 7:00 every evening, we start their vest and breathing treatments again which take approximately 1 hour.
In 2016, our local walk raised over $24K and had over 200 walkers. This year’s walk is Sunday, September 17 at 2:00pm at Mercelina Park (hot water hole area).