If there was ever a family I would trust to put together my house, it would be the DeLee Family. Their house was bright, inviting, color-coordinated and oh-so-organized. Everything had a place and (at least to start on this particular Saturday morning) it was all in the intended places too.
From the corner of the family room, I could see the sterilizing machine that gets rid of germs. It sits next to the dozens of pills and enzymes Fawkes takes every day to help absorb nutrients. Past the front door, you'll see a cart with a vest that Fawkes wears twice a day to break up the mucus in his lungs.
Reducing the time it takes to do these treatment is one of Hudson's biggest hopes for Fawkes' future; he said it would be ideal for Fawkes to just have to take one pill in the morning instead of 30 pills throughout the day.
Betsy said she just hopes what they are doing now will help keep Fawkes healthy in the future.
"I don't want him to suffer," Betsy said. "I feel like we're making decisions for him to give him the best chance he has."
You can help find a cure for Cystic Fibrosis by donating to the foundation: https://metrodc.finestcff.org/ellenbryan.