We were sitting on her family's back porch, when Elena Lohsen told me she doesn’t see her life as that different than her peers. This was amazing to me considering everything I know Elena must do in a single day to combat Cystic Fibrosis.
As I watched photos of Elena’s life pass by, I actually started to believe it when Elena told me she doesn’t think she’s all that different. Because if you look closely at the photos, one thing is pretty obvious: Elena doesn’t let CF hold her back from living a full life.
The photo that finally convinced me was one of Elena sitting in what looks like an airport with her vest on doing a CF treatment. It looked completely normal, just part of her routine, to wear that vest. Even in the middle of a crowd.
From Elena’s YouTube video to the Xtreme Hike the family hosts every fall, they are incredibly involved with the Cystic Fibrosis Foundation.
“I'm sure I'll get a lot of questions at lunch time about the pills I have to take,” Elana said. “So I think that will be cool educating some people.”
You can help find a cure for Cystic Fibrosis by donating to the foundation: https://metrodc.finestcff.org/ellenbryan.
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