Just before the interview started, Evan Ransom ran into the family room to sit with his parents and two brothers on the couch. The second he turned to jump into their laps, the back of his shirt came into the frame of my video camera. It said, "I am a fighter."
Cystic Fibrosis is a hereditary disease that affects a person's lung and pancreas. A person with CF must do hours of treatments and take dozens of pills daily to stay healthy. To this point, the average lifespan of a person with CF is about 40 years.
But the Ransom Family doesn't focus on that number because new medications are pushing that number even higher.
I imagine that even one day when Evan fully realizes what Cystic Fibrosis is and the reasons behind his medications... he will remain that same energetic, smiling person; full of life and ready to tackle any challenge. Because I believe that motto "I am a fighter" won't just describe the first four years of Evan's life - but every year after it too.
You can help find a cure for Cystic Fibrosis by donating to the foundation: https://metrodc.finestcff.org/ellenbryan.